Teen Slays At Reminding Us That Not All Disabilities Are Visible

All kinds of YES!

This is one young person wise beyond her years from whom we can all learn a lesson.

Aimee Rouski, a 19-year-old with Crohn’s disease, has posted three powerful photos on Facebook that have gone viral. One photo illustrates how seemingly normal Rouski looks to most people. The other two reveal Rouski’s scars and ilestomy bag that are direct results of her disease.

The post, which has been shared over 18,000 times since it was published on May 25, emphasizes self-acceptance and oozes with support, stating:

I've wanted to do this for a while because I always see body posi posts for weight, but not many for disabilities / invisible illnesses.

First off I have Crohn's disease, it's a serious incurable illness that nearly killed me, not just a stomach ache like most people seem to think.
A person with crohns will go through many different treatments including surgery, and it's the surgery I want to touch on now.

My Crohns has left me with a permanent ileostomy, no large intestine, colon, rectum, anus, or inner thigh muscles as they were used for plastic surgery on my wounds.

I've always been okay with the stuff that has happened to me, but some people have real difficulties accepting these things so I just want to say this.
No one will know unless you tell them.
People who know will still love you and still find you beautiful.
Your illness is nothing to be ashamed or embarrassed about <3

 

When Rouski was 15 years old, Crohn’s disease — a chronic inflammatory condition that affects the gastrointestinal tract — was causing her extreme pain. She could barely walk or eat and decided to undergo three surgeries and a seven-month stay in a hospital to resolve her issues.

The surgery left her with several large open wounds, which were too large to heal on their own and had to be covered with muscle from her inner thighs. Her small bowel was also brought to the outside of her abdomen, which is now covered with an ileostomy bag that collects waste.

“I was inspired to write my post because I don’t see much awareness for Crohn’s and other invisible illnesses,” Rouski told Metro UK. “Often people assume that all I’ve had to deal with is a little stomach ache – when in fact, this disease nearly killed me.”

Invisible diseases like Crohn's can have symptoms ranging from debilitating fatigue, pain, cognitive dysfunctions and mental disorders, as well as hearing and eyesight impairments, according to Invisible Disabilities Association, a nonprofit that advocates and educates people and organizations affected by disability.

Rouski says she hopes her message impacts people going through a similar experience as she is, as she sums up her motive for her post to Metro:

“I wanted to show people that there’s nothing to be ashamed of and that we should accept and love ourselves no matter what.”

 

Before You Go

10 Best States For People With Disabilities
Ohio(01 of10)
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Ohio "dramatically" increased the number of individuals and resources committed to serving the disability community and cut the number of people being served in large institutions by more than half, according to the 2015 Case for Inclusion report. It rose from No. 48 in 2007, to No. 10 in 2015.

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South Carolina(02 of10)
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The report found that improving conditions for people with disabilities doesn't necessarily require enormous wealth. South Carolina was the 44th poorest state, based on median income, yet it was No. 9 in terms of quality of life for people with disabilities.

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Washington, D.C.(03 of10)
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Washington, D.C. is one of 14 states that reported having no state institutions that seclude people with intellectual or developmental disabilities.

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Minnesota(04 of10)
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Minnesota is among 14 states that offers support services to a large number of families caring for a relative with disabilities. Such programs allow families to stay together and enable people with disabilities to live in a community setting, according to the 2015 Case for Inclusion report.

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Colorado(05 of10)
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Colorado is one of eight states that are top performers in the “home-like setting standard" category. That means that 80 percent of people with disabilities live in their own home, a family home, or group setting that has fewer than four residents.

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Hawaii(06 of10)
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Hawaii is one of 10 states where at least 10 percent of people with disabilities use self-directed services, according to the 2015 Case for Inclusion report. That means they have more control, and are more involved in decision-making matters, when it comes to their Medicaid services.

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New York(07 of10)
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Since 1960, 220 state institutions have closed. By next year, 16 more are expected to be shuttered, which include two in New York. Activists often argue that such large institutions segregate people with disabilities from society and also aren't cost efficient, Amber Smock wrote in a blog post for American Association of People with Disabilities.

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Missouri(08 of10)
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Missouri jumped from No. 41 in 2007 to No. 3 this year by increasing the amount of resources allocated to people with disabilities and closing six state institutions, among other noteworthy improvements.

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Maryland(09 of10)
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Maryland is one of just eight states where at least 33 percent of people with intellectual or developmental disabilities are working in competitive employment. That’s down from 10 states last year, according to the 2015 Case of Inclusion report.

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Arizona(10 of10)
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While Arizona ranked No. 1 overall, the 2015 Case for Inclusion report called on the state to still work toward making the state even more accessible for people with disabilities by promoting productivity, a category it came in at No. 41.

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